United Way Caregivers Coalition Caregivers Toolbox
<<< Back
Developmental Disabilities
ADHD: Student's Study Guide Tips
The Community for Accredited Online School is a comprehensive accreditation resource that provides prospective students and families with tools to help them make well-informed decisions about their education. The following guide features tips for improving academic success from a clinical psychologist who specializes in the evaluation and treatment of ADHD.
Information: Click here
Alzheimer's Disease and Down Syndrome: A Practical Guidebook for Caregivers
The National Down Syndrome Society (NDSS) has prepared this free guidebook for caregivers. This booklet was designed to help empower families and caregivers with knowledge about the connection between Down syndrome and Alzheimer's disease
Information: Click here
The Arc of the United States
The Arc is the largest national community-based organization advocating for and serving people with intellectual and developmental disabilities and their families. We encompass all ages and more than 100 different diagnoses including autism, Down syndrome, Fragile X syndrome, and various other developmental disabilities. Information: Click here
The Arc of New Jersey Family Institute -Health Care Go Bag
The Arc of New Jersey's Mainstreaming Medical Care Health and Wellness Materials- All materials found at the bottom of the webpage.
Information: Click here
Boggs Center on Developmentap Disabilities- Being a healthy Adult: How to Advocate for Your Health and Health Care
Centers for Disease Control and Prevention (CDC)
Fetal Alcohol Spectrum Disorders (FASDs) are a group of conditions that can occur in a person whose mother drank alcohol during pregnancy. FASDs are completely preventable if a woman does not drink alcohol during pregnancy.
Information: Click here
Consumer Financial Protection Bureau (CFPB): Focus on People with Disabilities
The CFPB empowers consumers to take more control over their economic lives and as such they have developed a companion guide which contains tips, tools, and skill-building resources based in insights from individuals with disabilities and from various organizations that serve them.
Click here for the guide, Click here for their blog, or Click here to learn more about the CFPB
Digital Resources for Students with Autism
The digital age brings good news for teachers and parents dealing with students with autism. Today, there are more technologies than ever before to help students with speech, interaction, participation, and communication, making for more integrated classrooms and innovative therapies that help these students learn.
Information: Click here
Disability Resources for College Students
Learn How to Become has developed a resource guide for college students with disabilities. This guide provides information on rights and responsibilities, access to services and supports, and expert advice from postsecondary administrators.
Information: Click here
The Division of Developmental Disabilities (DDD): Support Program, In Planning Stage
The Division of Developmental Disabilities (DDD) is in the development stages of a new program called the Support Program, which will provide needed support and services for adult individuals, 21 and older, living with their families or in their own unlicensed homes. It has been designed to help New Jersey better serve adults with developmental disabilities, significantly reduce the number of individuals waiting for supports and services, and enhance the State's ability to receive a federal "match" ($.50 on the dollar) for services that are currently funded via state-only funding.
Information: Click here
The Division of Developmental Disabilities (DDD): Support Program Manual The Division and Regional Family Supports Planning Council has developed a quick guide for families which may assist them in gaining a basic understanding of the Supports Program and its service benefits. It may assist to those who are newly entering Division services, and it also may be particularly helpful for middle school and high school students with intellectual/development disabilities and their families.
Information: Click here
The Division of Developmental Disabilities (DDD): New Medicaid Eligibility Section
Many of you have questions and concerns regarding The Division of Developmental Disabilities (DDD) new rule mandating that all individuals 21 and over must be eligible for Medicaid in order to continue receiving services through DDD. DDD recently added a "Medicaid Eligibility and DDD" section to its website. On it you will find Frequently Asked Questions, Fact Sheets and Medicaid Document Checklists. DDD also established an email address and phone number specifically for provider agencies and for families to use to contact DDD with questions or concerns regarding Medicaid eligibility DDD.
Information: 609.631.6505, email MediElighelpdesk@dhs.state.nj.us, or click here
Division of Disability Sevices- The research and preparation of this guide was accomplished through a collaborative effort of the New Jersey Department of Human Services, Division of Developmental Disabilities, Office for the Prevention of Mental Retardation and Developmental Disabilities and the Division of Disability Services, the Disability, Health and Wellness Program. Wellness Guide- Vol. 1 and Wellness Guide- Vol. 2
FAS Community Resource Center
Information about Fetal Alcohol Syndrome (FAS) and Fetal Alcohol Spectrum Disorders (FASD).
Information: Click here
FAS Diagnostic & Prevention Network (FAS DPN)
The mission of the FAS DPN is primary and secondary prevention of FAS through screening, diagnosis, intervention, training, education, and research. The WA State FAS DPN has expanded both nationally and internationally through the training of interdisciplinary teams. Several hundred interdisciplinary teams have been trained around the world.
Information: Click here
Fetal Alcohol and Drug Unit (FADU)
Focuses on disseminating research information, providing consultation for individuals affected by prenatal exposure to alcohol, and intervening with high-risk mothers to prevent future births of children with fetal alcohol and drug effects.
Information: Click here
Fetal Alcohol Syndrome Family Resource Institute (FAS*FRI)
A non-profit organization that seeks to understand and care for individuals disabled by prenatal alcohol exposure and their families, and to prevent future generations from having to live with this disability.
Information: Click here
GiGi's Playhouse - Down Syndrome Achievement Centers
GiGi's Playhouse offers free therapeutic and educational programming to individuals with Down syndrome and their families. They also provide career training programs and promote global acceptance through their Generation G campaign.
Information: Click here
Guide for Families – Help in Selecting a Support Coordination Agency
For people receiving support through the Division of Developmental Disabilities (DDD).
Information: 732.235.9320, email susan.ellien@rutgers.edu, or click here
March of Dimes
Works to end premature birth and other problems that threaten our babies, helps moms have full-term pregnancies and healthy babies, offers information and comfort to families, and researches the reasons why babies are born too soon or very sick and work on preventions.
Information: Click here
Mom 2 Mom Helpline Program
For mothers caring for children with special needs. Clinicians and peer supporters (other mothers with special needs children trained in peer counseling and crisis support) provide telephone support, explain resources, and explore your needs. Live chat support also available through website.
Information: 877.914.MOM2 (6662) or Click here
National Institute for Alcohol Abuse and Alcoholism (NIAAA)
The National Institute on Alcohol Abuse and Alcoholism (NIAAA) is one of the 27 institutes and centers that comprise the National Institutes of Health (NIH). NIAAA supports and conducts research on the impact of alcohol use on human health and well-being. It is the largest funder of alcohol research in the world.
Information: Click here
National Organization on Fetal Alcohol Syndrome (NOFAS)
The NOFAS works to prevent prenatal exposure to alcohol, drugs, and other substances known to harm fetal development by raising awareness and supporting women before and during their pregnancy, and supports individuals, families, and communities living with Fetal Alcohol Spectrum Disorders (FASDs) and other preventable intellectual/developmental disabilities.
Information: Click here
NJ Council on Developmental Disabilities
Works to ensure that people with developmental disabilities become empowered advocates and participate in the design of services and support.
Information: Click here
PerformCare: Children Receiving Services, DDD Transfer to DCF
Beginning January 1, 2013 all children (up to age 21) receiving services thorough the Division of Developmental Disabilities (DDD) will transfer to the Department of Children and Families (DCF). The State of New Jersey has for many years contracted with PerformCare to administer DCF’s Child Behavioral Health System. PerformCare is now the single point of entry for children with I/DD in New Jersey as well. PerformCare recently published a Fact Sheet, “Frequently Asked Questions for Families with Children with Developmental and Intellectual Disabilities,” that provides information regarding the switch.
Information: Click here
SAMHSA FASD Center for Excellence
Under the previously funded FASD Center for Excellence, SAMHSA developed several publications and resources that continue to be available. The following are intended to assist people affected by FASD and their families, state and local agency administrators, and service providers.
Information: Click here
Substance Abuse and Mental Health Services Administration (SAMHSA): Treatment Facility Locator
A confidential and anonymous source of information for persons seeking treatment facilities in the U.S. or U.S. Territories for substance abuse/addiction and/or mental health problems.
Information: Click here
"When Caregivers Need the Healing." New York Times. 28 July 2014. Saint Louis, Catherine
Studies show that parents of children with developmental disabilities, like autism, experience depression and anxiety far more often than other parents. A study found that just six weeks of training in simple techniques led to significant reductions in stress, depression and anxiety among these parents.
Information: Click here
|
