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Disease and Disability Websites

American Childhood Cancer Organization
Working to make a difference in the lives of the nation’s childhood cancer patients, survivors and their families.
Click here

Christopher & Dana Reeve Foundation, For Caregivers of Those with Spinal Cord Injuries
Dedicated to curing spinal cord injury by funding innovative research, and improving the quality of life for people living with paralysis and their caregivers through grants, information and advocacy.
Click here

Consumer Financial Protection Bureau (CFPB):  Focus on People with Disabilities
The CFPB empowers consumers to take more control over their economic lives and as such they have developed a companion guide which contains tips, tools, and skill-building resources based in insights from individuals with disabilities and from various organizations that serve them.
Click here for the guide, Click here for their blog, or Click here to learn more about the CFPB

Multiple System Atrophy (MSA) Coalition
The Multiple System Atrophy Coalition is an inclusive U.S. based 501(c)3 charity focused primarily on facilitating and funding MSA research for this rare and fatal neurodegenerative disorder. The MSA Coalition also provides patient/caregiver education and emotional support, education for healthcare professionals, and leadership in MSA advocacy activities.
Click here

National Aphasia Association
Providing access to research, education, rehabilitation, therapeutic and advocacy services to individuals with aphasia and their caregivers.
Click here

United Way’s "Pathways for Caregivers" Guide
A comprehensive list of disease/disability websites can be found in Appendix B of United Way’s “Pathways for Caregivers” guide.
Click here

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